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Advances in Disability Research Ethics (en Inglés)
Good, Anne ; Elliott, Iris ; Mallon, Sharon (Autor)
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Emerald Publishing Limited
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Advances in Disability Research Ethics (en Inglés) - Good, Anne ; Elliott, Iris ; Mallon, Sharon
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Reseña del libro "Advances in Disability Research Ethics (en Inglés)"
Research with or about people with disabilities presents challenges and complexities which have not been given the attention they deserve if we are truly to create research knowledge ethically to advance disability rights. Considering important aspects of general ethical research principles, including respect, consent, privacy and confidentiality, this volume of Advances in Research Ethics and Integrity fills that gap and considers the broad scope, complexity and significant size of the disabled population. Chapters examine processes of disablement and the specificities which arise when researching the lives of people with physical, mental, intellectual or sensory impairments, in the context of social factors such as gender, ethnicity and age. Building from the context of UNCRPD and other official guidance, authors explore topics such as ensuring quality in data, the importance of defining terms, ethical inclusion, use and misuse of the concept of vulnerability, the intersection of race and ethnicity, the role of ethics committees and maximising research impact. Encouraging other researchers to develop their own exemplars, Advances in Disability Research Ethics establishes an inspiring vision for both present and future improvements across all levels of disability research.